Lupus Research Alliance
Lupus Research Alliance
  • 281
  • 922 057
Nandan (Dan) Baruah Shares a Message for 2024 World Lupus Day
Dan Baruah, member of Lupus Therapeutics Patient Advocate for Patient Studies (PALS) program, and Lupus Accelerating Breakthroughs Consortium (Lupus ABC) Lupus Voices Council, shares an inspiring and hopeful message on World Lupus Day for those living with lupus.
Learn more: lupusresearch.org
Lupus affects millions worldwide, and there is no cure. Please help the Lupus Research Alliance to raise awareness and funds for lupus research.
Follow Us:
LupusResearch
Facebook.com/LupusResearchAlliance
LupusResearchAlliance
Переглядів: 26

Відео

Lupus ABC Lupus Voices Council member Elizabeth SantaCruz - Spanish
Переглядів 202 місяці тому
Learn more: lupusresearch.org Lupus affects millions worldwide, and there is no cure. Please help the Lupus Research Alliance to raise awareness and funds for lupus research. Follow Us: LupusResearch Facebook.com/LupusResearchAlliance LupusResearchAlliance
Lupus ABC Lupus Voices Council member Elizabeth SantaCruz
Переглядів 112 місяці тому
Elizabeth SantaCruz, a member of the Lupus Accelerating Breakthroughs Consortium’s Lupus Voices Council, shares her experience with her daughter who has lupus, why it's important to have representation for younger members of the lupus community in the drug development process, and what she hopes Lupus ABC will achieve for people living with lupus. Learn more about Lupus ABC: lupusabc.org Follow...
Lupus ABC Lupus Voices Council member Malinda Logan
Переглядів 132 місяці тому
Malinda Logan, a member of the Lupus Accelerating Breakthroughs Consortium’s Lupus Voices Council, talks about her experience with lupus and why it's important to include the perspective of individuals with lupus in the drug development process. Learn more about Lupus ABC: lupusabc.org Lupus affects millions worldwide, and there is no cure. Please help the Lupus Research Alliance to raise aware...
Lupus ABC Lupus Voices Council member Narae Yun
Переглядів 312 місяці тому
Narae Yun, a member of the Lupus Accelerating Breakthroughs Consortium’s Lupus Voices Council, talks about the importance of including the perspective of individuals with lupus in the drug development process, and what she hopes Lupus ABC will achieve for people living with lupus. Learn more about Lupus ABC: lupusabc.org Lupus affects millions worldwide, and there is no cure. Please help the Lu...
Devon Kelly Discusses LRA's Lupus Nexus and Lupus Landmark Study
Переглядів 1252 місяці тому
Hear from Devon Kelly, Director of the Lupus Nexus at LRA, about how the Lupus Nexus and the Lupus Landmark Study will make a difference in the lives of people with lupus. The Lupus Nexus is a first-of-its-kind lupus registry, biorepository, and data exchange platform that aims to accelerate lupus research and translation to drug development and patient care. The Lupus Nexus includes the Lupus ...
"Living While Living with Lupus" by Shanelle Gabriel
Переглядів 1344 місяці тому
Shanelle Gabriel, singer/poet/lyricist/advocate for lupus awareness, shares her inspiring original poem "Living While Living with Lupus" as a message to encourage fellow lupus warriors. Learn more: lupusresearch.org Lupus affects millions worldwide, and there is no cure. Please help the Lupus Research Alliance to raise awareness and funds for lupus research. Follow Us: LupusResearch...
Stacie Bell Reflects on Her First Year at Lupus Therapeutics
Переглядів 1155 місяців тому
Stacie Bell, Ph.D., reflects on her first year as Executive Vice President at Lupus Therapeutics, the clinical affiliate of Lupus Research Alliance, and how she believes we're at the precipice of making discoveries that will impact the lives of people living with lupus. Learn more about Lupus Therapeutics: lupustherapeutics.org Learn more about lupus and the Lupus Research Alliance: lupusresear...
Hope Inspired by Progress
Переглядів 2585 місяців тому
Lupus community members Brianna Fitzpatrick, Shanelle Gabriel, and Gayle Taliaferro share their individual perspectives about what having lupus feels like for each of them, and how being part of the lupus community and working with the LRA empowers them to be the best versions of themselves. LRA President and CEO Albert T. Roy speaks about our funded research that is leading to real results for...
2023 Year in Review with LRA President & CEO Albert Roy
Переглядів 1486 місяців тому
2023 was an extraordinary year for the Lupus Research Alliance and our clinical research affiliate Lupus Therapeutics - thanks to all of you. Hear from President and CEO Albert T. Roy about why we can be proud of what we’ve accomplished together so far, and what exciting progress lies ahead in 2024. We are relentlessly committed to investing in the world’s best lupus research, with people with ...
Progress and Promise: Treatment & Trends Update for People with Lupus
Переглядів 1 тис.9 місяців тому
This educational webinar covers a broad range of topics to help all people with lupus, including newly diagnosed patients - interested in learning about current treatment, research trends - and resources to help them become better self-advocates. Medical experts in lupus will provide perspectives on FAQs about treatment and clinical research and a look to the future about what’s in the pipeline...
Neuropsychiatric Lupus: 4 Questions with Dr. Meggan Mackay, Part 4
Переглядів 60610 місяців тому
Dr. Mackay is a rheumatologist, as well as LRA-funded researcher, who is working with her team to find more answers that lead to better treatments for people with lupus. In part 4 of our series she answers the question: What is your research on neuropsychiatric lupus looking at? Learn more about lupus and the LRA: lupusresearch.org Lupus affects millions worldwide, and there is no cure. Please ...
Neuropsychiatric Lupus: 4 Questions with Dr. Meggan Mackay, Part 3
Переглядів 42010 місяців тому
How can people with lupus improve their cognitive health? In part 3 of our series “Neuropsychiatric Lupus: 4 Questions with Dr. Meggan Mackay”, rheumatologist and LRA-funded researcher Dr. Mackay answers this question. Watch to learn more! Learn more about lupus and the LRA: lupusresearch.org Lupus affects millions worldwide, and there is no cure. Please help the Lupus Research Alliance to rais...
Neuropsychiatric Lupus: 4 Questions with Dr. Meggan Mackay, Part 2
Переглядів 46610 місяців тому
In part 2 of our video series with Dr. Meggan Mackay, she answers the question: How do we know that lupus is causing neuropsychiatric symptoms? Watch to learn more from Dr. Meggan Mackay, rheumatologist and LRA-funded researcher! Learn more about lupus and the LRA: lupusresearch.org Lupus affects millions worldwide, and there is no cure. Please help the Lupus Research Alliance to raise awarenes...
2023 LRA Global Team Science Award - Dr. Elena Hsieh
Переглядів 23511 місяців тому
The LRA is pleased to announce the 2023 Global Team Science Award (GTSA) recipients an exceptional multidisciplinary research team working to identify what causes lupus nephritis in children with the aim of improving its diagnosis and treatment. The GTSA provides $3 million over three years to catalyze groundbreaking discoveries and revolutionize our understanding of lupus development, progress...
Neuropsychiatric Lupus: 4 Questions with Dr. Meggan Mackay, Part 1
Переглядів 99511 місяців тому
Neuropsychiatric Lupus: 4 Questions with Dr. Meggan Mackay, Part 1
Project CHANGE in One Word
Переглядів 12011 місяців тому
Project CHANGE in One Word
LRA's 2023 Lupus Insight Prize - Carola Vinuesa, MD, PhD
Переглядів 384Рік тому
LRA's 2023 Lupus Insight Prize - Carola Vinuesa, MD, PhD
Lupus Advocate Shane Lerner Shares How Lupus Changed His Life
Переглядів 303Рік тому
Lupus Advocate Shane Lerner Shares How Lupus Changed His Life
Highlights from LuCIN Community Meeting
Переглядів 113Рік тому
Highlights from LuCIN Community Meeting
Why is Clinical Research Participation Important?
Переглядів 110Рік тому
Why is Clinical Research Participation Important?
Highlights from Inaugural Lupus Accelerating Breakthroughs Consortium (Lupus ABC) Meeting
Переглядів 353Рік тому
Highlights from Inaugural Lupus Accelerating Breakthroughs Consortium (Lupus ABC) Meeting
What is Patient Advocates for Lupus Studies (PALS)?
Переглядів 78Рік тому
What is Patient Advocates for Lupus Studies (PALS)?
Yvonne Sterling - Finding Her Voice
Переглядів 117Рік тому
Yvonne Sterling - Finding Her Voice
Equity in Clinical Research
Переглядів 46Рік тому
Equity in Clinical Research
Lupus Accelerating Breakthroughs Consortium (LupusABC)
Переглядів 324Рік тому
Lupus Accelerating Breakthroughs Consortium (LupusABC)
Lupus ABC Announcement
Переглядів 248Рік тому
Lupus ABC Announcement
LRA 2022 Year in Review with President Albert Roy
Переглядів 456Рік тому
LRA 2022 Year in Review with President Albert Roy
LRA Global Team Science Award - Dr. Eric Morand
Переглядів 96Рік тому
LRA Global Team Science Award - Dr. Eric Morand
LRA Global Team Science Award - Dr. Martin Kriegel
Переглядів 63Рік тому
LRA Global Team Science Award - Dr. Martin Kriegel

КОМЕНТАРІ

  • @kotaljohn4145
    @kotaljohn4145 4 дні тому

    My mom has lupus since 2001 but her condition is bad If I could win the lottery I would donate the money to find a cure for her disease

  • @kathyagalidis8822
    @kathyagalidis8822 7 днів тому

    Dr Morand was my treating doctor for lupus and is an amazing doctor. He has never given up to find treatment and answers. Thankyou Dr Morand

  • @DAS4NI
    @DAS4NI Місяць тому

    bro yall i got diagnosed w lupus nd i have joint pain and my knees nd ankles hurt so bad i cant sleep at night yall help 😔🙏🙏

  • @srichey444
    @srichey444 Місяць тому

    I wish I was 😵 every single day

  • @bendovergoober
    @bendovergoober Місяць тому

    vcfbdxdf

  • @khy6201
    @khy6201 Місяць тому

    Anyone having issues with their ankles? I can barely walk on my left ankle, 2 complete hip replacements and now this. I don’t know if it’s an ankle replacement but I don’t want it.

  • @ad60924
    @ad60924 Місяць тому

    Exactly but I push myself it's very difficult

  • @idwtv3550
    @idwtv3550 Місяць тому

    My wife was diagnosed with Lupus 6 months ago. We belong to a poor family. For this reason we are unable to provide treatment.😢

  • @annabellevaughn5968
    @annabellevaughn5968 2 місяці тому

    I had chest pain and it is so hard to tell if it is my ms or the lupus. I have 3 immune conditions so it makes it very difficult to tell what is going on. God bless you/us all. ❤ I pray non stop.

  • @sinthiyaislam4999
    @sinthiyaislam4999 2 місяці тому

    it was too much painful😭, i can't explain how it feels. sometimes people don't even understand what is going through me. I can't go to university. i have to go outside covering myself,I lost my hair. i got rashes 😭😭

  • @yeseniaortega8351
    @yeseniaortega8351 3 місяці тому

    This helps me so much to explain to my family and friends what I go through.

  • @royas196
    @royas196 3 місяці тому

    I live in Iran, rheumatologists prescribe hydroxychloroquine, prednisolone regardless of the patient's history.

  • @Nisha-kl8rl
    @Nisha-kl8rl 3 місяці тому

    I've tried countless remedies for my body pain, but nothing compares to the effectiveness of Planet Ayurveda's products. Their commitment to using natural ingredients sets them apart from the rest.

  • @nirmalakocharla3305
    @nirmalakocharla3305 4 місяці тому

    No doctor is helping during pregnancy on one is giving good suggestion to proceed successfully in pragnancy

  • @IrmaAttwater
    @IrmaAttwater 4 місяці тому

    in germany the treat lupus pation with systemic multi enzyme therapy ,clearing out the excess fibrin ,after 4days 96 prozent of the women taking the enzymes said there pain is completely gone natural health reports dr.Wolf

  • @VeronicaOtto-bi6es
    @VeronicaOtto-bi6es 4 місяці тому

    I was did with lupus now I have covid

  • @purple_crocheter
    @purple_crocheter 4 місяці тому

    I feel the same way about the limbs cutting off part just in so much pain

  • @ungracefultoga4101
    @ungracefultoga4101 4 місяці тому

    Recently got diagnosed with Lupus years after constantly being prescribed NSAID’s. Needless to say my kidneys aren’t doing too well.

  • @monaasmr2936
    @monaasmr2936 5 місяців тому

    😢😢😢

  • @rodrigomartinsrsm
    @rodrigomartinsrsm 5 місяців тому

    Coimbra protocol and you put Lupus in total remission, simply shut down the disease, since high vitamin d regulates the antibodies, preventing it from attacking your own body. You have also, carnivore diet, the need of controlling leaky gut, etc. It's completely possible to put autoimmune diseases in total remission in a completely natural way.

  • @ladybazan6279
    @ladybazan6279 5 місяців тому

    Where I can Go to hear for that Hope, I'm using the same medication from the day I was diagnosed with Lupus my pain is getting worse, I'm filling like a had the flu, filling tired most of the time. I don't what to do. Daiser Bazan.

  • @TheFireisland
    @TheFireisland 6 місяців тому

    My Mom, sister, (lost her life to lupus), and myself all have Lupus. I thank you so very much for all of your efforts, and authentic investment in all that you do…appreciation is immeasurable.

  • @SDLF4H
    @SDLF4H 6 місяців тому

    Two amazing women fighting the fight together. Amen.

  • @robinmoore4994
    @robinmoore4994 6 місяців тому

    Shanelle, your enthusiasm is infectious! I'm a singer-songwriter as well! Where might be hear your music? Pax~

  • @nathangallegos9304
    @nathangallegos9304 6 місяців тому

    I hope she beats Lupus and gets well and better

  • @SonyPii
    @SonyPii 6 місяців тому

    I can't believe they said "It's not lupus"

  • @taliacoletta8776
    @taliacoletta8776 7 місяців тому

    Is there such thing as curing learning disability because apparently lupus doesn’t really affect your brain learning disability, affects your brain there’s no medicine for it at all, but there’s very tiny little medicines for lupus people with learning disability having a hard time doing things it’s not fun at all !

  • @lukemcquade4300
    @lukemcquade4300 7 місяців тому

    Aip diet will change your life

  • @purplepatch7
    @purplepatch7 7 місяців тому

    God the end hit me hard. i feel like im running around like a crazy person when i do have energy cause i know it won't last.

  • @Midiaceful
    @Midiaceful 7 місяців тому

    Perhaps it would be best for them to stay with her and keep her immune system healthy in the living body.

  • @janethnunez4300
    @janethnunez4300 7 місяців тому

    Help I’m suffering from extreme joint pain. I have been to so many doctors and specialists and chiropractors and everyone says I’m fine. But there are days where I literally feel like my body me mine, my joints get so flared up and I can’t take it. There was a period after pregnancy where it was every single day. It affected my ability to drive and even hold a pencil or spoon. There’s days I can’t even give myself water because I have no strength in my hands. Now the pain comes and goes in different areas but when it hits my whole body I seriously feel like I can’t move. Even blankets hurt my toes. I’m only 24 and have been living with joint pain since middle school. But no one tells me anything 😭

    • @TheEcoClimber
      @TheEcoClimber 3 місяці тому

      I know this experience. I’m 52 & ever since age around 20 I’ve had joint and arm pains that doctors and physios etc can’t explain.

  • @sylviegamboa106
    @sylviegamboa106 7 місяців тому

    I really respect her for her strength and braveness to help. I have this and its not easy and the public is so ignorant to understand how hard it is. I pray everyone out there who struggles with this is truly blessed and truly healed♥️

  • @not4gotin
    @not4gotin 8 місяців тому

    Iris lynch is a pedophile

  • @ingridcharnley6537
    @ingridcharnley6537 8 місяців тому

    Mistress to Dr. Terry Strom

  • @PSILOVEYOUJAMESBLUNT
    @PSILOVEYOUJAMESBLUNT 9 місяців тому

    How can I be part of this study? I have Lupus SLE for 25 years. My cogenative is so bad. I have several Brain MRI but no one talks to me about Lupus X the brain. Can you pls help me?

  • @nancycarlos5695
    @nancycarlos5695 9 місяців тому

    I have been suffering from Lupus disease for some year without having a solution to it until i done a research on UA-cam i come and cross Dr.Auchi on UA-cam channel. That was were i find effective herbal medicine to cure my Lupus disease permanently without having side effect from the herbal product.. i recommend #drauchi herbal medicine for Lupus disease cure...❤️❤️

  • @lisaeaster4665
    @lisaeaster4665 9 місяців тому

    Thanks to Dr.Auchi on UA-cam channel for helping me with his herb 🌿 to cure my Sle Lupus disease 🦠 ,now I am completely cured from Sle Lupus disease. Doctor you are the best I have ever met, he is really great herbalist doctor, he has cure for another disease and infection with virus in the body, His herbal medication is 100% guaranteed without side effects in the body, visit his UA-cam channel #drauchi ❤❤

  • @lisaeaster4665
    @lisaeaster4665 9 місяців тому

    Thanks to Dr.Auchi on UA-cam channel for helping me with his herb 🌿 to cure my Sle Lupus disease 🦠 ,now I am completely cured from Sle Lupus disease. Doctor you are the best I have ever met, he is really great herbalist doctor, he has cure for another disease and infection with virus in the body, His herbal medication is 100% guaranteed without side effects in the body, visit his UA-cam channel #drauchi ❤❤

  • @lisaeaster4665
    @lisaeaster4665 9 місяців тому

    Thanks to Dr.Auchi on UA-cam channel for helping me with his herb 🌿 to cure my Sle Lupus disease 🦠 ,now I am completely cured from Sle Lupus disease. Doctor you are the best I have ever met, he is really great herbalist doctor, he has cure for another disease and infection with virus in the body, His herbal medication is 100% guaranteed without side effects in the body, visit his UA-cam channel #drauchi ❤❤

  • @lisaeaster4665
    @lisaeaster4665 9 місяців тому

    Thanks to Dr.Auchi on UA-cam channel for helping me with his herb 🌿 to cure my Sle Lupus disease 🦠 ,now I am completely cured from Sle Lupus disease. Doctor you are the best I have ever met, he is really great herbalist doctor, he has cure for another disease and infection with virus in the body, His herbal medication is 100% guaranteed without side effects in the body, visit his UA-cam channel #drauchi ❤❤

  • @lisaeaster4665
    @lisaeaster4665 9 місяців тому

    Thanks to Dr.Auchi on UA-cam channel for helping me with his herb 🌿 to cure my Sle Lupus disease 🦠 ,now I am completely cured from Sle Lupus disease. Doctor you are the best I have ever met, he is really great herbalist doctor, he has cure for another disease and infection with virus in the body, His herbal medication is 100% guaranteed without side effects in the body, visit his UA-cam channel #drauchi ❤❤

  • @lisaeaster4665
    @lisaeaster4665 9 місяців тому

    Thanks to Dr.Auchi on UA-cam channel for helping me with his herb 🌿 to cure my Sle Lupus disease 🦠 ,now I am completely cured from Sle Lupus disease. Doctor you are the best I have ever met, he is really great herbalist doctor, he has cure for another disease and infection with virus in the body, His herbal medication is 100% guaranteed without side effects in the body, visit his UA-cam channel #drauchi ❤❤

  • @lisaeaster4665
    @lisaeaster4665 9 місяців тому

    Thanks to Dr.Auchi on UA-cam channel for helping me with his herb 🌿 to cure my Sle Lupus disease 🦠 ,now I am completely cured from Sle Lupus disease. Doctor you are the best I have ever met, he is really great herbalist doctor, he has cure for another disease and infection with virus in the body, His herbal medication is 100% guaranteed without side effects in the body, visit his UA-cam channel #drauchi ❤❤

  • @lisaeaster4665
    @lisaeaster4665 9 місяців тому

    Thanks to Dr.Auchi on UA-cam channel for helping me with his herb 🌿 to cure my Sle Lupus disease 🦠 ,now I am completely cured from Sle Lupus disease. Doctor you are the best I have ever met, he is really great herbalist doctor, he has cure for another disease and infection with virus in the body, His herbal medication is 100% guaranteed without side effects in the body, visit his UA-cam channel #drauchi ❤❤

  • @user-xg9ni9hc1k
    @user-xg9ni9hc1k 9 місяців тому

    how do I sign up for participation?

    • @lisaeaster4665
      @lisaeaster4665 9 місяців тому

      Thanks to Dr.Auchi on UA-cam channel for helping me with his herb 🌿 to cure my Sle Lupus disease 🦠 ,now I am completely cured from Sle Lupus disease. Doctor you are the best I have ever met, he is really great herbalist doctor, he has cure for another disease and infection with virus in the body, His herbal medication is 100% guaranteed without side effects in the body, visit his UA-cam channel #drauchi ❤❤

  • @susanalexander7921
    @susanalexander7921 9 місяців тому

    Thank you. There seems to be more new treatments for Lupus that I know nothing about. Thank you, Shanelle, for your lovely poem. It's inspiring. I sometimes forget the passion I once had for fighting this illness.

    • @lisaeaster4665
      @lisaeaster4665 9 місяців тому

      Thanks to Dr.Auchi on UA-cam channel for helping me with his herb 🌿 to cure my Sle Lupus disease 🦠 ,now I am completely cured from Sle Lupus disease. Doctor you are the best I have ever met, he is really great herbalist doctor, he has cure for another disease and infection with virus in the body, His herbal medication is 100% guaranteed without side effects in the body, visit his UA-cam channel #drauchi ❤❤

  • @erickadavis4957
    @erickadavis4957 9 місяців тому

    I was 16 when diagnosed with lupus. I’ll be 40 in two weeks. One of my main concerns is pain. My new pain doctor took me off pain medication because it wasn’t showing up in my system. Is that normal? What can I do to get back on the medication because it really helped?

    • @lisaeaster4665
      @lisaeaster4665 9 місяців тому

      Thanks to Dr.Auchi on UA-cam channel for helping me with his herb 🌿 to cure my Sle Lupus disease 🦠 ,now I am completely cured from Sle Lupus disease. Doctor you are the best I have ever met, he is really great herbalist doctor, he has cure for another disease and infection with virus in the body, His herbal medication is 100% guaranteed without side effects in the body, visit his UA-cam channel #drauchi ❤❤

    • @hollywooddeardeer5561
      @hollywooddeardeer5561 6 місяців тому

      Ketamine is very helpful when you've had it for so long. Ask your pain management Dr about that. Unfortunately most insurance doesn't cover it.

  • @RaulELeon
    @RaulELeon 9 місяців тому

    In order to spread world wide the advances of Lupus treatment, this kind of webinar must be translate to different languages like spanish.